Saturday, May 12, 2012
A New Season
Update from Kimberly (Mommy): I'm sorry for the lack of posts over the past few months. We have had some major changes recently, and have finally settled in to our "new" lives. We left the Ronald McDonald House Dallas and moved into a temporary transplant apartment in a nearby town for the duration of our wait for Audree's new heart. We made some wonderful friends during out time at RMHD and miss seeing everyone on a daily basis. However, thanks to FB we get to keep up with everyone pretty regularly. It has been nice to get into our own "home", though. Audree was initially pretty hesitant to crawl out of the living room. She was used to our room at RMHD. But within a few days, her curiosity got the better of her and now she crawls all around the apartment. She is also "cruising" along the furniture. It is so cute to see her tiny little legs, wobbling ever so slightly, as she gains courage to take those itsy bitsy steps. Audree's condition is still stable. She has not had any improvement in heart function, but she has not had any decline either. This past week I received some FANTASTIC news. Back in February I discovered some groundbreaking research conducted by Dr. Sunjay Kaushal, in which he and his colleauges were studying the effectivenss of using a child's own stem cells to improve their heart function. After a few weeks of searching, I was able to get in touch with his office. Last week his assistant called to let me know that Dr. Kaushal is just a few months away from having FDA approval for his method of using a child's own bone marrow stem cells to treat cardiomyopathy. Once they get FDA approval, Dr. Kaushal wants to discuss the possibility of treating Audree!!!! With Audree's situation there was no treatment option. Our only hope (medically speaking) was a heart transplant. This new research and the pending FDA approval for this new treatment option is a wonderful ray of hope for Audree and for our family! Please pray that this is the miracle that we have been waiting for! This week has been a busy one for us. Aunt Aline came to stay for a few days. We love having her here to help and to visit. She is that Aunt who can make even the simplest activities fun and is always there to lend a hand. Also, my parents (aka Grammy & Papa), Mark, Mark Aron and Avaree are here visiting for Mother's Day weekend. We have had a wonderful time! Mark and the kids gave me the best gift - a beautiful framed picture of all 3 of the kids! We are truly blessed to have our 3 angel babies. Thank you all for the continued prayers and the encouraging words.